Monday I had to pick up Anthony from school because he wasn't feeling
well. Let's just say his stomach wasn't cooperating with him. I realized
that one of the worst parts of being the parent of an autistic kiddo
with limited speech is they don't have the ability to "tell" you how
they are feeling. That is so frustrating for me, I can only imagine how
frustrating it is for him. It breaks my heart to see him not feeling
well and it's even worse when you add frustration.
When
I picked up Daniel, he was just starting to act like he didn't feel
quite right. Sure enough, a little bit later he had a "stomach" issue
also. I was so grateful that by the time they went to bed they both
seemed to be feeling better. Having kiddos with autism is challenging,
having kiddos with little to no verbal skills is hard, having kiddos
with both... let's just say - there are good days and there are bad
days.
Due
to their lack of verbal skills, working with the boys every day is a
must when it comes to trying to get them to talk. Daniel has virtually
no language, he's great at "verbal imitation" when he's "on" - or having
a good day. Having Applied Behavior Analysis (ABA) therapy 5 days a
week helps; being in an autistic classroom helps too; and then everyone
who walks through the door also tries to get him to talk.
Anthony
has more verbal skills than Daniel, but still doesn't carry on any type
of conversation (at least not at this point). ABA has helped him with
"verbal imitation", and school works on it as well. Like with Daniel,
everyone who comes in the house also tries to get him to use his words.
The interesting part is getting them to comply and speak. Usually we
have to give them some type of motivator, or something to work for. The
hard part will be to get them to talk without the motivator.
One of the most heard phrases around our home (other than "look at me") is "use your words". The boys almost seem to
roll
their eyes when we say that, but they know that we are not going to let
them skate by. That's the worst thing we could do. Kiddos on the
spectrum must be constantly reminded, or coached, to do what they need
to do. At least until it becomes engrained in them. This goes for almost
every aspect of their life, at least in our home. Failure to be
consistent is a total disservice to them.
From a mother's heart -
It's so easy to take speech for granted. Have a conversation with your
kiddos, family member and friends today... enjoy whatever form of
communication you use.
God Bless!
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